Sorry it has been awhile... we just returned last evening from an 8-day trip to the Southern Caribbean . I have a lot of phone calls and emails to catch up with.
It was an interesting trip as the weather was not what we have been use to. The first day was an all-day rain which the Captain earned some laughter referring to it as "quite yukkie" over the PA system. Least it wasn't snowing!
We eventually had sun and fun but it was the company of our great friends Chuck and Diane that was amazing. I was concerned with my recent surgery, worries about current brain tumors as well as other side effects I am dealing with from the cancer (vision and memory issues) but Ed, Diane and Chuck took good care of me. It was actually Ed who had two trips to the cruise ship doctor -come to find out he had a bad bout of shingles which caused him not to feel well through most of the trip. However we had lots of laughs and an amazing white water rafting adventure in Costa Rica. The Lund's are truly wonderful people and friends.
While we were glad to get home Wednesday evening I did have my MRI and doctor appontments today. Our news wasn't great but agreed we will try a few new things and hopefully find a way to get some quality of life as we move forward. My area the tumors were removed via the surgery a month ago have already returned. The swelling is what is causing the poor eye sight and my memory loss/confusion. So tonight I will start on steroids and a high dose of a new chemo called CCNU. Dr Uhm is hopeful that this may get a hold on the tumors.
I asked if it is possible to make it through June as I am so looking forward to the upcoming famly weddings (Drew/Keeley and Rachel/Lucus)? He is hopeful that if this treatment works I will get to not only attend but enjoy a few dances! I'm not a "Debbie Downer" but the way I have been feeling making it to July will be truly a gift.
So for all of you that I have yet to get back to, please be patient with me as everything I do right now is changeling. However, I am in good hands...God Bless!
posted by sue @ 8:32 PM
10 Comments:
Sue and family,
You are a fighter! Keep it going!
We love you and you are in our prayers!
The Zastrow Family
Sue
I'm blessed to have you as a friend and love your courage, strength and faith. You and your strong family remain always in my prayers.
Dee Schemmel
Sue: Glad you were able to get away from the snow and have some sunshine. If anyone can brighten your spirits, it's my lovely sister-in-law and brother. They are pretty great. Keep fighting girl! You and your family are always in my thoughts and prayers. Jen Rose
Love you Sue and Ed! Glad you had a chance to enjoy time with Chuck and Diane. Sorry to hear about the shingles, Ed! Keep fighting Sue! We love you so very, very much!
Lauren, Pete, Isaiah and Marcus
STINK! I'm so sorry to hear about the rapid return of the tumors. If there was ever a lady who had the will to fight to July and beyond it is YOU!. I will always have you in my prayers. Your strength in God gives us all reason to hope for the best.
Brenda
Our prayers are always with you. Keep up the good fight.
Love, The Glaser's
Sue and Ed, you are wonderful people and demonstrate great spirit. You're surrounded by tons of great friends and really great family. Keep true to yourself and I hope you find comfort from the pain Sue.
Lori Odegard
Keep fighting Sue! I use you as an inspiration to others that have cancer. Your spirit is what has kept you going for so long. I have no doubts at all that you will make it to July and probably beyond. Maybe see a Vikings Super Bowl victory? Ahhhh, that would be nice. Plus we need you around to keep Ed in line:)
Prayers and Positive Vibes to You,
Kristine IHrke
Sue, Thank you for updating so soon after your trip. Hope Ed has found relief from the shingles. Continuing to lift you in prayer. Love, Paula Ps. 84
Sue & Family--Sorry to hear that the tumors returned so quickly. s we all believe, if anyone can fight this you can, and there isn't a doubt that with your family's help, you have the will to be present at the Drew's wedding. Continuing to think about you....Deb Gjere
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